Publications
2025
An, Qingfan; Sandlund, Marlene; Lundell, Sara; Kuenen, Christoffel; Chastin, Sebastien; Helleday, Ragnberth; Messiha, Katrina; Loisel, Quentin; Wadell, Karin
Transition design: Co-creating system solutions for chronic obstructive pulmonary disease (COPD) care Journal Article
In: Design Studies, vol. 98, 2025, ISSN: 0142-694X.
Abstract | Links | BibTeX | Tags: Implementation, Technology
@article{An2025,
title = {Transition design: Co-creating system solutions for chronic obstructive pulmonary disease (COPD) care},
author = {Qingfan An and Marlene Sandlund and Sara Lundell and Christoffel Kuenen and Sebastien Chastin and Ragnberth Helleday and Katrina Messiha and Quentin Loisel and Karin Wadell},
doi = {10.1016/j.destud.2025.101297},
issn = {0142-694X},
year = {2025},
date = {2025-05-00},
urldate = {2025-05-00},
journal = {Design Studies},
volume = {98},
publisher = {Elsevier BV},
abstract = {Choosing the appropriate design process is critical for the effective implementation and long-term sustainment of interventions aimed at addressing public health challenges. To address this need, we proposed a Transition Design model to identify and deliver sustainable solutions for complex healthcare problems. This model generates system-level health-intervention initiatives that can synergistically function, particularly during the development and implementation phases, to enhance healthcare delivery. Drawing from a case study on addressing the challenges of hospitalisations and early discharge for people with acute exacerbations of chronic obstructive pulmonary disease (AECOPD), we reflected on the process and analysed the outcomes. Although further testing for the initiatives is warranted, this study contributes to the evolving discourse in design research on systems solutioning for public-health challenges.},
keywords = {Implementation, Technology},
pubstate = {published},
tppubtype = {article}
}
2023
Agnello, Danielle M; Loisel, Quentin; An, Qingfan; Balaskas, George; Chrifou, Rabab; Dall, Philippa M; de Boer, Janneke; Delfmann, Lea R; Giné-Garriga, Maria; Goh, Kunshan; Longworth, Giuliana R; Messiha, Katrina; McCaffrey, Lauren; Smith, Niamh; Steiner, Artur; Vogelsang, Mira; Chastin, Sebastien
In: J Med Internet Res, vol. 25, 2023, ISSN: 1438-8871.
Abstract | Links | BibTeX | Tags: Methodology, Technology
@article{Agnello2023,
title = {Establishing a Health CASCADE–Curated Open-Access Database to Consolidate Knowledge About Co-Creation: Novel Artificial Intelligence–Assisted Methodology Based on Systematic Reviews},
author = {Danielle M Agnello and Quentin Loisel and Qingfan An and George Balaskas and Rabab Chrifou and Philippa M Dall and Janneke de Boer and Lea R Delfmann and Maria Giné-Garriga and Kunshan Goh and Giuliana R Longworth and Katrina Messiha and Lauren McCaffrey and Niamh Smith and Artur Steiner and Mira Vogelsang and Sebastien Chastin},
doi = {10.2196/45059},
issn = {1438-8871},
year = {2023},
date = {2023-07-18},
urldate = {2023-07-18},
journal = {J Med Internet Res},
volume = {25},
publisher = {JMIR Publications Inc.},
abstract = {Background
Co-creation is an approach that aims to democratize research and bridge the gap between research and practice, but the potential fragmentation of knowledge about co-creation has hindered progress. A comprehensive database of published literature from multidisciplinary sources can address this fragmentation through the integration of diverse perspectives, identification and dissemination of best practices, and increase clarity about co-creation. However, two considerable challenges exist. First, there is uncertainty about co-creation terminology, making it difficult to identify relevant literature. Second, the exponential growth of scientific publications has led to an overwhelming amount of literature that surpasses the human capacity for a comprehensive review. These challenges hinder progress in co-creation research and underscore the need for a novel methodology to consolidate and investigate the literature.
Objective
This study aimed to synthesize knowledge about co-creation across various fields through the development and application of an artificial intelligence (AI)-assisted selection process. The ultimate goal of this database was to provide stakeholders interested in co-creation with relevant literature.
Methods
We created a novel methodology for establishing a curated database. To accommodate the variation in terminology, we used a broad definition of co-creation that encompassed the essence of existing definitions. To filter out irrelevant information, an AI-assisted selection process was used. In addition, we conducted bibliometric analyses and quality control procedures to assess content and accuracy. Overall, this approach allowed us to develop a robust and reliable database that serves as a valuable resource for stakeholders interested in co-creation.
Results
The final version of the database included 13,501 papers, which are indexed in Zenodo and accessible in an open-access downloadable format. The quality assessment revealed that 20.3% (140/688) of the database likely contained irrelevant material, whereas the methodology captured 91% (58/64) of the relevant literature. Participatory and variations of the term co-creation were the most frequent terms in the title and abstracts of included literature. The predominant source journals included health sciences, sustainability, environmental sciences, medical research, and health services research.
Conclusions
This study produced a high-quality, open-access database about co-creation. The study demonstrates that it is possible to perform a systematic review selection process on a fragmented concept using human-AI collaboration. Our unified concept of co-creation includes the co-approaches (co-creation, co-design, and co-production), forms of participatory research, and user involvement. Our analysis of authorship, citations, and source landscape highlights the potential lack of collaboration among co-creation researchers and underscores the need for future investigation into the different research methodologies. The database provides a resource for relevant literature and can support rapid literature reviews about co-creation. It also offers clarity about the current co-creation landscape and helps to address barriers that researchers may face when seeking evidence about co-creation.},
keywords = {Methodology, Technology},
pubstate = {published},
tppubtype = {article}
}
Co-creation is an approach that aims to democratize research and bridge the gap between research and practice, but the potential fragmentation of knowledge about co-creation has hindered progress. A comprehensive database of published literature from multidisciplinary sources can address this fragmentation through the integration of diverse perspectives, identification and dissemination of best practices, and increase clarity about co-creation. However, two considerable challenges exist. First, there is uncertainty about co-creation terminology, making it difficult to identify relevant literature. Second, the exponential growth of scientific publications has led to an overwhelming amount of literature that surpasses the human capacity for a comprehensive review. These challenges hinder progress in co-creation research and underscore the need for a novel methodology to consolidate and investigate the literature.
Objective
This study aimed to synthesize knowledge about co-creation across various fields through the development and application of an artificial intelligence (AI)-assisted selection process. The ultimate goal of this database was to provide stakeholders interested in co-creation with relevant literature.
Methods
We created a novel methodology for establishing a curated database. To accommodate the variation in terminology, we used a broad definition of co-creation that encompassed the essence of existing definitions. To filter out irrelevant information, an AI-assisted selection process was used. In addition, we conducted bibliometric analyses and quality control procedures to assess content and accuracy. Overall, this approach allowed us to develop a robust and reliable database that serves as a valuable resource for stakeholders interested in co-creation.
Results
The final version of the database included 13,501 papers, which are indexed in Zenodo and accessible in an open-access downloadable format. The quality assessment revealed that 20.3% (140/688) of the database likely contained irrelevant material, whereas the methodology captured 91% (58/64) of the relevant literature. Participatory and variations of the term co-creation were the most frequent terms in the title and abstracts of included literature. The predominant source journals included health sciences, sustainability, environmental sciences, medical research, and health services research.
Conclusions
This study produced a high-quality, open-access database about co-creation. The study demonstrates that it is possible to perform a systematic review selection process on a fragmented concept using human-AI collaboration. Our unified concept of co-creation includes the co-approaches (co-creation, co-design, and co-production), forms of participatory research, and user involvement. Our analysis of authorship, citations, and source landscape highlights the potential lack of collaboration among co-creation researchers and underscores the need for future investigation into the different research methodologies. The database provides a resource for relevant literature and can support rapid literature reviews about co-creation. It also offers clarity about the current co-creation landscape and helps to address barriers that researchers may face when seeking evidence about co-creation.
Balaskas, George; Papadopoulos, Homer; Loisel, Quentin; Pappa, Dimitra; Efthymoglou, George; Chastin, Sebastien
An end-to-end system for transcription, translation, and summarization to support the co-creation process. A Health CASCADE Study. Proceedings Article
In: pp. 625–631, ACM, 2023.
Abstract | Links | BibTeX | Tags: Technology
@inproceedings{Balaskas2023,
title = {An end-to-end system for transcription, translation, and summarization to support the co-creation process. A Health CASCADE Study.},
author = {George Balaskas and Homer Papadopoulos and Quentin Loisel and Dimitra Pappa and George Efthymoglou and Sebastien Chastin},
doi = {10.1145/3594806.3596567},
year = {2023},
date = {2023-07-05},
urldate = {2023-07-05},
pages = {625--631},
publisher = {ACM},
abstract = {This paper presents a web service and a deep learning (DL) pipeline that has been developed and implemented as part of the MSCA Health CASCADE project. The purpose of the web service is to provide support, streamline, and enable participatory methods, such as co-creation, in the public health domain. The DL pipeline assists with translation, transcription, speaker diarization, relation extraction, and summarization of audio recordings. This is achieved by removing the need for time-consuming tasks, such as translating and transcribing audio recordings. Additional value is created by extracting implicit relations from the transcribed text and identifying patterns, key themes, and trends. Finally, providing summaries of the transcripts creates a sense of ownership that can improve stakeholder retention in participatory methods.},
keywords = {Technology},
pubstate = {published},
tppubtype = {inproceedings}
}
Coming Soon...
- YoCo conceptual framework: Integrating interdisciplinary approaches for the design and evaluation of a youth-centered co-creation project towards healthy urban public space.
- Adolescents’ experiences of a shortened co-creation process to adapt a healthy sleep intervention – A Health CASCADE study
- Co-creating a multicomponent complex intervention to improve the experience of hospitalization for people with chronic obstructive pulmonary disease (COPD) using intervention mapping
- Explore the experience and expectations of hospital care during acute exacerbations of chronic obstructive pulmonary disease: Perspective of patients
- Teachers’ experiences with a co-creation process to develop an implementation plan for a school-based intervention targeting healthy sleep in adolescents: a Health CASCADE study
- Process evaluation of a school-based intervention to promote healthy sleep among adolescents: comparison between a school with a co-created implementation plan and a school with a standard implementation plan (a Health CASCADE study).
- Dissolving implementation barriers: a co-creation process with teachers to refine an implementation plan of an intervention targeting physical activity and sedentary behaviour in adolescents (a Health CASCADE study).
- Actualizing child and adolescent empowerment in participatory action research for health promotion: a six-element framework
- Designing a communication tool for primary care: Understanding patient needs and experiences using collaborative research methods
- Predictive Modelling of a Digital Health Intervention’s Impact on Obstetrics Care Costs: Insights from a Randomized Controlled Trial
- The dark side of co-creation for health promotion interventions: insights from Health CASCADE researchers
- Implementing a youth centred approach to placemaking to co-create a socially and physically activating public space for teens – A Health Cascade Study
- Enabling Evidence-based Public Health Co-creation through Large Language Model and Deep learning systems: A Health CASCADE study.
- Optimizing Large Language Models (LLM) for Domain-Specific Tasks through Dataset Creation, Model Fine-tuning and Preference Optimization: A Health CASCADE Study
- Leveraging Large Language Models for Patient Profile Generation, Literature Retrieval and Medical Information Summarization: A Health CASCADE Study
- Passage Retrieval and Question Answering systems to support evidence-based co-creation methodology: A Health CASCADE Study
- Engage4Change: Co-creating indoor common spaces in care homes and outdoor community spaces to improve movement behaviour and reduce social isolation: study protocol within the Health CASCADE study.
- Enriching the Existing Knowledge about Co-creation: Identifying Dimensions of Co-creation using Explicit Theory in Various Research Fields
- Towards System-Level Co-creation in eHealth Tool Development: Case Study of developing an eHealth tool for people with COPD.
- Revising the PRODUCES Framework to meet the current needs in co-creation for Public Health Intervention Design and Implementation
- The experiences of school staff with their involvement in the co-creation of school-based actions: A thematic synthesis of qualitative studies to inform Health CASCADE
- Co-creating digital tools in health care: Results from three case studies
- Elicited Insights from International Academics and a Dutch NGO on Youth Participatory Action Research – A Health CASCADE Study
- Adapting co-created interventions: usability of the ADAPT framework and recommendations. A Health CASCADE study
- Empirical ethical decision-making among those involved in co-creation practice: a Health CASCADE critical scoping review
- Comparison of Co-creation Methods in Research and in Practice: A Health CASCADE Study
- Establishing a Set of Evaluation Criteria for Assessing the Effectiveness of Co-creation Methods: A Health CASCADE Study
- Ecosystem of Digital Technologies for Co-creation (EDTC): A Health CASCADE taxonomy
- Co-creating statistical analysis pipelines in psychology: Applications in processing and analysing data for digital health tools
- Impact of co-creation methods on user engagement in digital health tools
- An end-to-end transcription and summarisation system to support the co-creation process
- Scoping review of needs for digital technologies in co-creation
- Leveraging Large Language Models for Patient Profile Generation, Literature Retrieval and Medical Information Summarization: A Health CASCADE Study
- A Health CASCADE assessment of digital technological needs for co-creation
- A Cross-Case Comparative Study of Co-Creation Experiences in Three Scottish SMEs.
- Adolescents’ experiences of a shortened co-creation process to adapt a healthy sleep intervention – A Health CASCADE study
- How to set up a co-creation protocol? Roadmap from a Health CASCADE study on sedentary behaviour in Scottish workplaces
The Iteration Of Three Co-Creation Processes From A Health CASCADE Study On Sedentary Behaviour In Scottish Workplaces - Evaluating The Sustainability And Co-created Solutions of Three Co-Creation Processes From A Health CASCADE Study On Sedentary Behaviour In Scottish Workplaces
- Evaluating The Effect Of Co-Created Interventions To Reduce Sedentary Behaviour In Scottish Workplaces: A Health CASCADE Study
- Ecosystem of Digital Technologies for Co-creation (EDTC): A Health CASCADE taxonomy
- Youth perspectives on the ethics of co-creation: a qualitative description  
- Grey Literature Scoping Review: A Synthesis on Participatory Methodologies in Aging Underrepresented Groups to Address Dementia
- Co-creation meets Critical Realism: Reflections and Recommendations Following a Participatory Workshop with Underrepresented Individuals for a Dementia Project
- Co-design and co-creation with people with disabilities
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