Publications
2025
de Boer, Janneke; Longworth, Giuliana Raffaella; Delfmann, Lea Rahel; Belmon, Laura Shanna; Vogelsang, Mira; Erikowa-Orighoye, Oritseweyinmi; An, Qingfan; Deforche, Benedicte; Cardon, Greet; Verloigne, Maïté; Altenburg, Teatske; Giné-Garriga, Maria
Exploring co-adaptation for public health interventions: insights from a rapid review and interviews Journal Article
In: BMC Public Health, vol. 25, no. 1, 2025, ISSN: 1471-2458.
Abstract | Links | BibTeX | Tags: Implementation
@article{deBoer2025,
title = {Exploring co-adaptation for public health interventions: insights from a rapid review and interviews},
author = {Janneke de Boer and Giuliana Raffaella Longworth and Lea Rahel Delfmann and Laura Shanna Belmon and Mira Vogelsang and Oritseweyinmi Erikowa-Orighoye and Qingfan An and Benedicte Deforche and Greet Cardon and Maïté Verloigne and Teatske Altenburg and Maria Giné-Garriga},
doi = {10.1186/s12889-025-21544-7},
issn = {1471-2458},
year = {2025},
date = {2025-12-00},
urldate = {2025-12-00},
journal = {BMC Public Health},
volume = {25},
number = {1},
publisher = {Springer Science and Business Media LLC},
abstract = {Background
Adapting co-creation research processes and/or public health interventions improves the fit between the intervention and population of interest, potentially resulting in more relevant and effective interventions. Mode 2 research approaches (e.g., co-creation, co-production, co-design, community-based participatory research, and participatory action research) can ensure that adaptations fit the socio-cultural and economic contexts. However, an overview of existing practices and how to co-adapt is lacking. This study aimed to provide an overview of the use of co-adaptation in co-creation processes and/or public health interventions.
Methods
We conducted a rapid review search on the Health CASCADE co-creation database. Relevant peer-reviewed studies reporting on co-adaptation of public health interventions were identified. A call for case studies via social media and co-authors’ snowballing was issued to perform interviews with co-creation researchers gaining insights into how co-adaptation was applied from unpublished studies and practice. Interviews were analysed using template analysis.
Results
Fourteen studies addressed various public health issues by co-adapting co-creation processes, intervention activities, communication platforms, monitoring strategies, training components, and materials’ language and tone. Most studies lacked detailed reporting on the co-adaptation process, though some provided information on group composition and number, duration, and methods applied. Two out of 14 studies used a framework (i.e., Intervention Mapping Adapt), seven described their adaptation procedure without naming a specific framework, and five did not report any procedures or frameworks. Five of seven case studies used adaptation frameworks (e.g., ADAPT guidance). Interviews provided insights into the co-adaptation process emphasising the importance of contextual fit, integrating prior knowledge, and logging adaptations.
Conclusions
This study is the first introducing the concept of and exploring co-adaptation of co-creation processes and/or public health interventions. It provides details regarding adaptations made, whether and which frameworks were used, and procedures applied to adapt. The findings highlight the need for tailored frameworks for co-adaptation and better reporting of co-adaptation processes.},
keywords = {Implementation},
pubstate = {published},
tppubtype = {article}
}
Adapting co-creation research processes and/or public health interventions improves the fit between the intervention and population of interest, potentially resulting in more relevant and effective interventions. Mode 2 research approaches (e.g., co-creation, co-production, co-design, community-based participatory research, and participatory action research) can ensure that adaptations fit the socio-cultural and economic contexts. However, an overview of existing practices and how to co-adapt is lacking. This study aimed to provide an overview of the use of co-adaptation in co-creation processes and/or public health interventions.
Methods
We conducted a rapid review search on the Health CASCADE co-creation database. Relevant peer-reviewed studies reporting on co-adaptation of public health interventions were identified. A call for case studies via social media and co-authors’ snowballing was issued to perform interviews with co-creation researchers gaining insights into how co-adaptation was applied from unpublished studies and practice. Interviews were analysed using template analysis.
Results
Fourteen studies addressed various public health issues by co-adapting co-creation processes, intervention activities, communication platforms, monitoring strategies, training components, and materials’ language and tone. Most studies lacked detailed reporting on the co-adaptation process, though some provided information on group composition and number, duration, and methods applied. Two out of 14 studies used a framework (i.e., Intervention Mapping Adapt), seven described their adaptation procedure without naming a specific framework, and five did not report any procedures or frameworks. Five of seven case studies used adaptation frameworks (e.g., ADAPT guidance). Interviews provided insights into the co-adaptation process emphasising the importance of contextual fit, integrating prior knowledge, and logging adaptations.
Conclusions
This study is the first introducing the concept of and exploring co-adaptation of co-creation processes and/or public health interventions. It provides details regarding adaptations made, whether and which frameworks were used, and procedures applied to adapt. The findings highlight the need for tailored frameworks for co-adaptation and better reporting of co-adaptation processes.
de Boer, Janneke; Delfmann, Lea Rahel; An, Qingfan; Loisel, Quentin Emile Armand; McCaffrey, Lauren; Koobasi, Muguet; Oeckel, Veerle Van; Chastin, Sebastien François Martin; Deforche, Benedicte; Altenburg, Teatske; Verloigne, Maïté; Cardon, Greet
School staff experiences on involvement in a co-creation process: a Health CASCADE scoping review and thematic synthesis Journal Article
In: BMC Public Health, vol. 25, no. 1, 2025, ISSN: 1471-2458.
Abstract | Links | BibTeX | Tags: Implementation
@article{deBoer2025b,
title = {School staff experiences on involvement in a co-creation process: a Health CASCADE scoping review and thematic synthesis},
author = {Janneke de Boer and Lea Rahel Delfmann and Qingfan An and Quentin Emile Armand Loisel and Lauren McCaffrey and Muguet Koobasi and Veerle Van Oeckel and Sebastien François Martin Chastin and Benedicte Deforche and Teatske Altenburg and Maïté Verloigne and Greet Cardon},
doi = {10.1186/s12889-025-22063-1},
issn = {1471-2458},
year = {2025},
date = {2025-12-00},
urldate = {2025-12-00},
journal = {BMC Public Health},
volume = {25},
number = {1},
publisher = {Springer Science and Business Media LLC},
abstract = {Background
Implementing public health interventions in schools requires active involvement of multiple stakeholders and adaptation of interventions to fit local contexts, to account for successful design, implementation, and consequently effectiveness of these interventions. Active collaboration, preferably in a co-creation process, with school staff is needed to enhance the implementation of school-based public health interventions. However, involving them in research through a co-creation process is challenging due to competing demands on their time. Hence, there is a need for insights into the factors facilitating or impeding co-creation processes involving school staff.
Methods
To gain in-depth knowledge of school staff’s experiences a scoping review and thematic synthesis have been conducted. Peer reviewed articles written in English and published between January 2012 and November 2023 were retrieved from ERIC, Education Database, Medline (PubMed interface), Embase, Web of Science, Scopus, and Health CASCADE Co-creation Database. Considering the high amount of search results the title and abstract screening was performed using ASReview. A thematic synthesis was conducted on the included articles.
Results
Ten scientific peer reviewed articles were included and thematically synthesised. Six descriptive themes described factors influencing the co-creation process, including competing work roles and responsibilities of school staff, multistakeholder collaboration, benefits of participation in the co-creation process, power imbalances between different stakeholders, and school staff’s lived experiences. Additionally, four analytical themes emerged indicating that demands of the co-creation process outweigh its benefits. To tackle excessive demands school staff preferred a guided process in which high-level participation was less important. School staff joined the co-creation process to serve students and emphasised the importance of being heard and taken seriously.
Conclusions
School staff indicated that excessive demands outweigh the benefits experienced during the co-creation process. Therefore, school staff preferred less time-intensive processes. Improving students outcomes was school staff’s motivation to be involved, which asks for processes with student-related goals and observable student benefits. Moreover, school staff needs to be acknowledged as an expert and valued for their involvement. These results should be considered to make co-creation processes involving school staff more feasible and satisfactory.},
keywords = {Implementation},
pubstate = {published},
tppubtype = {article}
}
Implementing public health interventions in schools requires active involvement of multiple stakeholders and adaptation of interventions to fit local contexts, to account for successful design, implementation, and consequently effectiveness of these interventions. Active collaboration, preferably in a co-creation process, with school staff is needed to enhance the implementation of school-based public health interventions. However, involving them in research through a co-creation process is challenging due to competing demands on their time. Hence, there is a need for insights into the factors facilitating or impeding co-creation processes involving school staff.
Methods
To gain in-depth knowledge of school staff’s experiences a scoping review and thematic synthesis have been conducted. Peer reviewed articles written in English and published between January 2012 and November 2023 were retrieved from ERIC, Education Database, Medline (PubMed interface), Embase, Web of Science, Scopus, and Health CASCADE Co-creation Database. Considering the high amount of search results the title and abstract screening was performed using ASReview. A thematic synthesis was conducted on the included articles.
Results
Ten scientific peer reviewed articles were included and thematically synthesised. Six descriptive themes described factors influencing the co-creation process, including competing work roles and responsibilities of school staff, multistakeholder collaboration, benefits of participation in the co-creation process, power imbalances between different stakeholders, and school staff’s lived experiences. Additionally, four analytical themes emerged indicating that demands of the co-creation process outweigh its benefits. To tackle excessive demands school staff preferred a guided process in which high-level participation was less important. School staff joined the co-creation process to serve students and emphasised the importance of being heard and taken seriously.
Conclusions
School staff indicated that excessive demands outweigh the benefits experienced during the co-creation process. Therefore, school staff preferred less time-intensive processes. Improving students outcomes was school staff’s motivation to be involved, which asks for processes with student-related goals and observable student benefits. Moreover, school staff needs to be acknowledged as an expert and valued for their involvement. These results should be considered to make co-creation processes involving school staff more feasible and satisfactory.
An, Qingfan; Sandlund, Marlene; Lundell, Sara; Kuenen, Christoffel; Chastin, Sebastien; Helleday, Ragnberth; Messiha, Katrina; Loisel, Quentin; Wadell, Karin
Transition design: Co-creating system solutions for chronic obstructive pulmonary disease (COPD) care Journal Article
In: Design Studies, vol. 98, 2025, ISSN: 0142-694X.
Abstract | Links | BibTeX | Tags: Implementation, Technology
@article{An2025,
title = {Transition design: Co-creating system solutions for chronic obstructive pulmonary disease (COPD) care},
author = {Qingfan An and Marlene Sandlund and Sara Lundell and Christoffel Kuenen and Sebastien Chastin and Ragnberth Helleday and Katrina Messiha and Quentin Loisel and Karin Wadell},
doi = {10.1016/j.destud.2025.101297},
issn = {0142-694X},
year = {2025},
date = {2025-05-00},
urldate = {2025-05-00},
journal = {Design Studies},
volume = {98},
publisher = {Elsevier BV},
abstract = {Choosing the appropriate design process is critical for the effective implementation and long-term sustainment of interventions aimed at addressing public health challenges. To address this need, we proposed a Transition Design model to identify and deliver sustainable solutions for complex healthcare problems. This model generates system-level health-intervention initiatives that can synergistically function, particularly during the development and implementation phases, to enhance healthcare delivery. Drawing from a case study on addressing the challenges of hospitalisations and early discharge for people with acute exacerbations of chronic obstructive pulmonary disease (AECOPD), we reflected on the process and analysed the outcomes. Although further testing for the initiatives is warranted, this study contributes to the evolving discourse in design research on systems solutioning for public-health challenges.},
keywords = {Implementation, Technology},
pubstate = {published},
tppubtype = {article}
}
Vogelsang, Mira; McCaffrey, Lauren; Ryde, Gemma C.; Verloigne, Maïté; Dall, Philippa
In: Public Health, vol. 242, pp. 157–164, 2025, ISSN: 0033-3506.
Abstract | Links | BibTeX | Tags: Implementation
@article{Vogelsang2025,
title = {Preparing for Co-Creation: A roadmap for planning a co-creation initiative from a case study on sedentary behaviour in Scottish SMEs – A health CASCADE study},
author = {Mira Vogelsang and Lauren McCaffrey and Gemma C. Ryde and Maïté Verloigne and Philippa Dall},
doi = {10.1016/j.puhe.2025.02.036},
issn = {0033-3506},
year = {2025},
date = {2025-05-00},
urldate = {2025-05-00},
journal = {Public Health},
volume = {242},
pages = {157--164},
publisher = {Elsevier BV},
abstract = {Objective
Co-creation is recognised as a promising approach for addressing complex health issues by collaborating with end-users to develop tailored solutions that meet their needs. Planning a co-creation initiative-resulting in a co-creation protocol-requires balancing between providing clear project details and the need for flexibility in co-creation. However, existing structured guidance necessary for effective co-creation planning in the literature does not exist. This study aimed to develop a practical co-creation planning roadmap for public health researchers and practitioners.
Study design:
Iterative development of an evidence-based co-creation planning roadmap based on case study reflections and expert input, and supported by existing co-creation literature.
Methods:
The roadmap was developed based on the experience of applying the PRODUCES framework and principles of the planning phase by Leask and colleagues (2019) for planning a co-creation case study on reducing sedentary behaviour in Scottish companies. The roadmap underwent several rounds of iteration with the research team, incorporated feedback from researchers experienced with co-creation, and was further supported by the established evidence base of co-creation literature.
Results:
The resulting roadmap has a seven-step approach, divided into four sections, involving: whether and why co-creation is an appropriate approach, framing the co-creation initiative (Section 1: Identify), defining stakeholders and co-creator sampling, describing resources and outcomes (Section 2: Define), structuring co-creation sessions, selecting methods for the co-creation sessions (Section 3: Structure) and planning for evaluation (Section 4: Plan Evaluation).
Conclusion:
The roadmap offers a structured and accessible process to guide the planning of co-creation initiatives. We suggest that the roadmap be applied to different contexts to further refine and validate its utility, with the ultimate goal of enhancing the systematic planning of co-creation in public health.},
keywords = {Implementation},
pubstate = {published},
tppubtype = {article}
}
Co-creation is recognised as a promising approach for addressing complex health issues by collaborating with end-users to develop tailored solutions that meet their needs. Planning a co-creation initiative-resulting in a co-creation protocol-requires balancing between providing clear project details and the need for flexibility in co-creation. However, existing structured guidance necessary for effective co-creation planning in the literature does not exist. This study aimed to develop a practical co-creation planning roadmap for public health researchers and practitioners.
Study design:
Iterative development of an evidence-based co-creation planning roadmap based on case study reflections and expert input, and supported by existing co-creation literature.
Methods:
The roadmap was developed based on the experience of applying the PRODUCES framework and principles of the planning phase by Leask and colleagues (2019) for planning a co-creation case study on reducing sedentary behaviour in Scottish companies. The roadmap underwent several rounds of iteration with the research team, incorporated feedback from researchers experienced with co-creation, and was further supported by the established evidence base of co-creation literature.
Results:
The resulting roadmap has a seven-step approach, divided into four sections, involving: whether and why co-creation is an appropriate approach, framing the co-creation initiative (Section 1: Identify), defining stakeholders and co-creator sampling, describing resources and outcomes (Section 2: Define), structuring co-creation sessions, selecting methods for the co-creation sessions (Section 3: Structure) and planning for evaluation (Section 4: Plan Evaluation).
Conclusion:
The roadmap offers a structured and accessible process to guide the planning of co-creation initiatives. We suggest that the roadmap be applied to different contexts to further refine and validate its utility, with the ultimate goal of enhancing the systematic planning of co-creation in public health.
An, Qingfan; Kuenen, Christoffel; Wadell, Karin
Co-creating an Ecology of Design Briefs for people with respiratory disease Journal Article
In: CoDesign, pp. 1–20, 2025, ISSN: 1745-3755.
Abstract | Links | BibTeX | Tags: Implementation
@article{An2025b,
title = {Co-creating an Ecology of Design Briefs for people with respiratory disease},
author = {Qingfan An and Christoffel Kuenen and Karin Wadell},
doi = {10.1080/15710882.2025.2477715},
issn = {1745-3755},
year = {2025},
date = {2025-03-11},
urldate = {2025-03-11},
journal = {CoDesign},
pages = {1--20},
publisher = {Informa UK Limited},
abstract = {In this study, we introduce a new approach to addressing the complexities of health systems challenges, which we name the Ecology of Design Briefs. This approach offers a structured framework for delivering key leverage points within these challenges and creating a conceptual space for feasible design opportunities. Acknowledging the limited reach of individual design solutions in tackling the complexities of health systems challenges, our approach draws on the ecology concept of Transition Design. The utilisation of the Ecology of Design Briefs results in a collection of interconnected specification documents for design projects that guide the creative process, working together synergistically to tackle the complexities. This approach was applied to enhance hospital care experiences for individuals with acute exacerbations of chronic obstructive pulmonary disease (COPD). Hospitalisations for this group frequently lead to multidimensional negative experiences, and addressing these issues is closely linked to resolving underlying health systems problems. Our findings suggest that the developed briefs provide comprehensive, mutually reinforcing, and detailed insights necessary for understanding these challenges. This study contributes to health systems problem-solving by conceptualising the Ecology of Design Briefs as an approach and documenting its application in a hospital care setting.},
keywords = {Implementation},
pubstate = {published},
tppubtype = {article}
}
McCaffrey, Lauren; McCann, Bryan; Giné-Garriga, Maria; An, Qingfan; Cardon, Greet; Chastin, Sebastien; Chrifou, Rabab; Lippke, Sonia; Loisel, Quentin; Longworth, Giuliana R; Messiha, Katrina; Vogelsang, Mira; Whyte, Emily; Dall, Philippa M
Co-creation experiences among adults in diverse contexts: A Health CASCADE scoping review Journal Article
In: Public Health, vol. 238, pp. 29–36, 2025, ISSN: 0033-3506.
Abstract | Links | BibTeX | Tags: Implementation
@article{McCaffrey2025,
title = {Co-creation experiences among adults in diverse contexts: A Health CASCADE scoping review},
author = {Lauren McCaffrey and Bryan McCann and Maria Giné-Garriga and Qingfan An and Greet Cardon and Sebastien Chastin and Rabab Chrifou and Sonia Lippke and Quentin Loisel and Giuliana R Longworth and Katrina Messiha and Mira Vogelsang and Emily Whyte and Philippa M Dall},
doi = {10.1016/j.puhe.2024.11.002},
issn = {0033-3506},
year = {2025},
date = {2025-01-00},
urldate = {2025-01-00},
journal = {Public Health},
volume = {238},
pages = {29--36},
publisher = {Elsevier BV},
abstract = {Objectives
This scoping review aimed to summarise available evidence relating to co-creation experiences among adults in diverse contexts. Understanding how participation in co-creation processes shapes experiences is important as it can offer insights into the improved development and effective use of such processes. Co-creation has increasingly gained attention due to its many claimed advantages and benefits to participants. There is however a lack of aggregated literature on stakeholders’ experience of the co-creation process.
Study design
Scoping review.
Methods
Arksey and O'Malley's methodological framework for conducting scoping reviews was used. A systematic search was conducted in Scopus and the Health CASCADE Co-creation Database (an open access curated database of 13,501 articles, screened for inclusion based on criteria relating to co-creation participatory research). Themes were generated through thematic analysis.
Results
We included 80 publications. Positive co-creation experiences were linked to establishing interpersonal relationships and positive group dynamics, enhanced well-being, personal development, satisfaction and fulfilment. Negative experiences were associated with initial uncertainties, project-related challenges, interpersonal issues, dissatisfaction, and disengagement.
Conclusion
This review offers insights into how co-creation shaped experiences and demonstrates the scope and characteristics of co-creation experiences. It highlights the need for further research, particularly in understanding the mechanisms underpinning and explaining experiences and in strategies for promoting positive experiences and mitigating negative experiences.},
keywords = {Implementation},
pubstate = {published},
tppubtype = {article}
}
This scoping review aimed to summarise available evidence relating to co-creation experiences among adults in diverse contexts. Understanding how participation in co-creation processes shapes experiences is important as it can offer insights into the improved development and effective use of such processes. Co-creation has increasingly gained attention due to its many claimed advantages and benefits to participants. There is however a lack of aggregated literature on stakeholders’ experience of the co-creation process.
Study design
Scoping review.
Methods
Arksey and O'Malley's methodological framework for conducting scoping reviews was used. A systematic search was conducted in Scopus and the Health CASCADE Co-creation Database (an open access curated database of 13,501 articles, screened for inclusion based on criteria relating to co-creation participatory research). Themes were generated through thematic analysis.
Results
We included 80 publications. Positive co-creation experiences were linked to establishing interpersonal relationships and positive group dynamics, enhanced well-being, personal development, satisfaction and fulfilment. Negative experiences were associated with initial uncertainties, project-related challenges, interpersonal issues, dissatisfaction, and disengagement.
Conclusion
This review offers insights into how co-creation shaped experiences and demonstrates the scope and characteristics of co-creation experiences. It highlights the need for further research, particularly in understanding the mechanisms underpinning and explaining experiences and in strategies for promoting positive experiences and mitigating negative experiences.
2024
McCaffrey, Lauren; McCann, Bryan; Giné-Garriga, Maria; An, Qingfan; Cardon, Greet; Chastin, Sebastien; Chrifou, Rabab; Lippke, Sonia; Loisel, Quentin; Longworth, Giuliana R; Messiha, Katrina; Vogelsang, Mira; Whyte, Emily; Dall, Philippa M
Adult co-creators’ emotional and psychological experiences of the co-creation process: a Health CASCADE scoping review protocol Journal Article
In: Syst Rev, vol. 13, no. 1, 2024, ISSN: 2046-4053.
Abstract | Links | BibTeX | Tags: Implementation
@article{McCaffrey2024,
title = {Adult co-creators’ emotional and psychological experiences of the co-creation process: a Health CASCADE scoping review protocol},
author = {Lauren McCaffrey and Bryan McCann and Maria Giné-Garriga and Qingfan An and Greet Cardon and Sebastien Chastin and Rabab Chrifou and Sonia Lippke and Quentin Loisel and Giuliana R Longworth and Katrina Messiha and Mira Vogelsang and Emily Whyte and Philippa M Dall},
doi = {10.1186/s13643-024-02643-9},
issn = {2046-4053},
year = {2024},
date = {2024-12-00},
urldate = {2024-12-00},
journal = {Syst Rev},
volume = {13},
number = {1},
publisher = {Springer Science and Business Media LLC},
abstract = {Background
There is a growing investment in the use of co-creation, reflected by an increase in co-created products, services, and interventions. At the same time, a growing recognition of the significance of co-creators’ experience can be detected but there is a gap in the aggregation of the literature with regard to experience. Therefore, the purpose of this scoping review is to uncover the breadth of existing empirical research on co-creation experience, how it has been defined and assessed, and its key emotional and psychological characteristics in the context of co-created products, services, or interventions among adults.
Methods
The development of the search strategy was guided by the research question, Arksey, and O’Malley’s scoping review methodology guidelines, and through collaboration with members of the Health CASCADE consortium. The results of the search and the study inclusion process will be reported in full and presented both narratively and by use of the Preferred Reporting Items for Systematic Reviews and Meta-analyses extension for scoping review (PRISMA-ScR) flow diagram. Comprehensive searches of relevant electronic databases (e.g. Scopus) will be conducted to identify relevant papers. Snowball searches to identify additional papers through included full-text papers will be done using the artificial intelligence tool, namely, Connected Papers. All review steps will involve at least two reviewers. Studies in English, Dutch, Chinese, Spanish, and French, published from the year 1970 onwards, will be considered. Microsoft Excel software will be used to record and chart extracted data.
Discussion
The resulting scoping review could provide useful insights into adult co-creators’ experience of participating in the co-creation process. An increased understanding of the role of emotional and psychological experiences of participating in co-creation processes may help to inform the co-creation process and lead to potential benefits for the co-creators and co-created outcome.},
keywords = {Implementation},
pubstate = {published},
tppubtype = {article}
}
There is a growing investment in the use of co-creation, reflected by an increase in co-created products, services, and interventions. At the same time, a growing recognition of the significance of co-creators’ experience can be detected but there is a gap in the aggregation of the literature with regard to experience. Therefore, the purpose of this scoping review is to uncover the breadth of existing empirical research on co-creation experience, how it has been defined and assessed, and its key emotional and psychological characteristics in the context of co-created products, services, or interventions among adults.
Methods
The development of the search strategy was guided by the research question, Arksey, and O’Malley’s scoping review methodology guidelines, and through collaboration with members of the Health CASCADE consortium. The results of the search and the study inclusion process will be reported in full and presented both narratively and by use of the Preferred Reporting Items for Systematic Reviews and Meta-analyses extension for scoping review (PRISMA-ScR) flow diagram. Comprehensive searches of relevant electronic databases (e.g. Scopus) will be conducted to identify relevant papers. Snowball searches to identify additional papers through included full-text papers will be done using the artificial intelligence tool, namely, Connected Papers. All review steps will involve at least two reviewers. Studies in English, Dutch, Chinese, Spanish, and French, published from the year 1970 onwards, will be considered. Microsoft Excel software will be used to record and chart extracted data.
Discussion
The resulting scoping review could provide useful insights into adult co-creators’ experience of participating in the co-creation process. An increased understanding of the role of emotional and psychological experiences of participating in co-creation processes may help to inform the co-creation process and lead to potential benefits for the co-creators and co-created outcome.
Longworth, Giuliana R; Erikowa-Orighoye, Oritseweyinmi; Anieto, Ebuka M; Agnello, Danielle M; Zapata-Restrepo, Jorge R; Masquillier, Caroline; Giné-Garriga, Maria
In: Global Health, vol. 20, no. 1, 2024, ISSN: 1744-8603.
Abstract | Links | BibTeX | Tags: Implementation
@article{Longworth2024,
title = {Conducting co-creation for public health in low and middle-income countries: a systematic review and key informant perspectives on implementation barriers and facilitators},
author = {Giuliana R Longworth and Oritseweyinmi Erikowa-Orighoye and Ebuka M Anieto and Danielle M Agnello and Jorge R Zapata-Restrepo and Caroline Masquillier and Maria Giné-Garriga},
doi = {10.1186/s12992-024-01014-2},
issn = {1744-8603},
year = {2024},
date = {2024-12-00},
urldate = {2024-12-00},
journal = {Global Health},
volume = {20},
number = {1},
publisher = {Springer Science and Business Media LLC},
abstract = {Background
There has been an increase in the use of co-creation for public health because of its claimed potential to increase an intervention’s impact, spark change and co-create knowledge. Still, little is reported on its use in low-and-middle-income countries (LMICs). This study offers a comprehensive overview of co-creation used in public-health-related interventions, including the interventions’ characteristics, and reported implementation barriers and facilitators.
Methods
We conducted a systematic review within the Scopus and PubMed databases, a Google Scholar search, and a manual search in two grey literature databases related to participatory research. We further conducted eight interviews with first authors, randomly selected from included studies, to validate and enrich the systematic review findings.
Results
Through our review, we identified a total of twenty-two studies conducted in twenty-four LMIC countries. Majority of the interventions were designed directly within the LMIC setting. Aside from one, all studies were published between 2019 and 2023. Most studies adopted a co-creation approach, while some reported on the use of co-production, co-design, and co-development, combined either with community-based participatory research, participatory action research or citizen science. Among the most reported implementation barriers, we found the challenge of understanding and accounting for systemic conditions, such as the individual’s socioeconomic status and concerns related to funding constraints and length of the process. Several studies described the importance of creating a safe space, relying on local resources, and involving existing stakeholders in the process from the development stage throughout, including future and potential implementors. High relevance was also given to the performance of a contextual and/or needs assessment and careful tailoring of strategies and methods.
Conclusion
This study provides a systematic overview of previously conducted studies and of reported implementation barriers and facilitators. It identifies implementation barriers such as the setting’s systemic conditions, the socioeconomic status and funding constrains along with facilitators such as the involvement of local stakeholders and future implementors throughout, the tailoring of the process to the population of interest and participants and contextual assessment. By incorporating review and interview findings, the study aims to provide practical insights and recommendations for guiding future research and policy.},
keywords = {Implementation},
pubstate = {published},
tppubtype = {article}
}
There has been an increase in the use of co-creation for public health because of its claimed potential to increase an intervention’s impact, spark change and co-create knowledge. Still, little is reported on its use in low-and-middle-income countries (LMICs). This study offers a comprehensive overview of co-creation used in public-health-related interventions, including the interventions’ characteristics, and reported implementation barriers and facilitators.
Methods
We conducted a systematic review within the Scopus and PubMed databases, a Google Scholar search, and a manual search in two grey literature databases related to participatory research. We further conducted eight interviews with first authors, randomly selected from included studies, to validate and enrich the systematic review findings.
Results
Through our review, we identified a total of twenty-two studies conducted in twenty-four LMIC countries. Majority of the interventions were designed directly within the LMIC setting. Aside from one, all studies were published between 2019 and 2023. Most studies adopted a co-creation approach, while some reported on the use of co-production, co-design, and co-development, combined either with community-based participatory research, participatory action research or citizen science. Among the most reported implementation barriers, we found the challenge of understanding and accounting for systemic conditions, such as the individual’s socioeconomic status and concerns related to funding constraints and length of the process. Several studies described the importance of creating a safe space, relying on local resources, and involving existing stakeholders in the process from the development stage throughout, including future and potential implementors. High relevance was also given to the performance of a contextual and/or needs assessment and careful tailoring of strategies and methods.
Conclusion
This study provides a systematic overview of previously conducted studies and of reported implementation barriers and facilitators. It identifies implementation barriers such as the setting’s systemic conditions, the socioeconomic status and funding constrains along with facilitators such as the involvement of local stakeholders and future implementors throughout, the tailoring of the process to the population of interest and participants and contextual assessment. By incorporating review and interview findings, the study aims to provide practical insights and recommendations for guiding future research and policy.
Zapata-Restrepo, Jorge R; Longworth, Giuliana R; Chinapaw, Mai JM; Dall, Philippa M; Skelton, Dawn A; Torné, Sacra M; Giné-Garriga, Maria
In: Cities & Health, vol. 8, no. 4, pp. 759–770, 2024, ISSN: 2374-8842.
Abstract | Links | BibTeX | Tags: Implementation
@article{Zapata-Restrepo2023,
title = {Inter-rater reliability of the ‘Tool for assessing determinants of health in public space’ in a co-creative urban design process with care home residents in Barcelona: a Health CASCADE study},
author = {Jorge R Zapata-Restrepo and Giuliana R Longworth and Mai JM Chinapaw and Philippa M Dall and Dawn A Skelton and Sacra M Torné and Maria Giné-Garriga},
doi = {10.1080/23748834.2023.2286724},
issn = {2374-8842},
year = {2024},
date = {2024-07-03},
urldate = {2024-07-03},
journal = {Cities & Health},
volume = {8},
number = {4},
pages = {759--770},
publisher = {Informa UK Limited},
abstract = {This study aims to evaluate the inter-rater reliability of the Tool for assessing determinants of health in public space, a methodology developed to assess the potential health impact of public space improvement actions. The study involved a participatory evaluation conducted during an urban design co-creation process with older adults and researchers from various disciplines. Ten older adults from a care home in Barcelona and five researchers participated in the evaluation of five selected public spaces using the tool. An analysis using Intra-class Correlation Coefficient (ICC) was conducted to assess inter-rater reliability. A descriptive comparison of the results was performed based on the scores given to each determinant. The findings provide insights into the tool’s reliability and its potential for capturing diverse perspectives. The Tool does not appear to have high reliability when implemented in a community setting. The ICC values for most of the determinants are relatively low, indicating poor or moderate levels of agreement among the raters/judges. The study highlights the importance of involving end-users and researchers in the evaluation process, emphasizing the need for user-centered design and co-creation in urban planning. The results contribute to improving public health outcomes and promoting age-friendly environments in urban spaces.},
keywords = {Implementation},
pubstate = {published},
tppubtype = {article}
}
Delfmann, Lea R; Verloigne, Maïté; Deforche, Benedicte; Hunter, Simon C; Cardon, Greet; de Boer, Janneke; Vandendriessche, Ann
Psychosocial Determinants of Sleep Behavior and Healthy Sleep Among Adolescents: A Two-Wave Panel Study Journal Article
In: J. Youth Adolescence, vol. 53, no. 2, pp. 360–373, 2024, ISSN: 1573-6601.
Abstract | Links | BibTeX | Tags: Implementation
@article{Delfmann2023,
title = {Psychosocial Determinants of Sleep Behavior and Healthy Sleep Among Adolescents: A Two-Wave Panel Study},
author = {Lea R Delfmann and Maïté Verloigne and Benedicte Deforche and Simon C Hunter and Greet Cardon and Janneke de Boer and Ann Vandendriessche},
doi = {10.1007/s10964-023-01866-8},
issn = {1573-6601},
year = {2024},
date = {2024-02-00},
urldate = {2024-02-00},
journal = {J. Youth Adolescence},
volume = {53},
number = {2},
pages = {360--373},
publisher = {Springer Science and Business Media LLC},
abstract = {To date, it remains unknown which psychosocial determinants identified by several leading behavior change theories are associated with different sleep parameters among adolescents. Therefore, this study investigates whether changes in knowledge about healthy sleep, attitude toward healthy sleep and going to bed on time, self-efficacy to engage in healthy sleep behavior, perceived parental and peer norms, perceived barriers (e.g., worrying, fear of missing out), and perceived support (e.g., bedtime rules, encouragement) related to healthy sleep are associated with changes in adolescents' sleep duration on school days and free days and sleep quality over a period of 1 year. Two-wave data of 1648 Flemish adolescents (mean age = 15.01, SD = 0.65, 46.3% female) were analyzed using linear models. Increased levels of parental social support, positive attitude towards and perceived advantages of healthy sleep, norm-knowledge, and perceived peer behavior were associated with sleep duration, with parental social support having the strongest association. Increased levels of perceived barriers were associated with decreased levels of sleep quality parameters, and increased levels of self-efficacy, positive attitude, and parental modeling were associated with improved sleep quality parameters, with perceived barriers having the strongest association. The current results indicate that behavior change theories are useful in the context of adolescent sleep behavior and suggest that perceived parental support (i.e., bedtime rules) and perceived barriers are most strongly associated with adolescents' sleep duration and/or quality.},
keywords = {Implementation},
pubstate = {published},
tppubtype = {article}
}
2023
Verloigne, Maïté; Altenburg, Teatske M; Cardon, Greet; Chinapaw, Mai JM; Dall, Philippa M; Deforche, Benedicte; Giné-Garriga, Maria; Lippke, Sonia; Papadopoulos, Homer; Pappa, Dimitra; Sandlund, Marlene; Schreier, Margrit; Wadell, Karin; Chastin, Sebastien
In: Perspect Public Health, vol. 143, no. 4, pp. 196–198, 2023, ISSN: 1757-9147.
Links | BibTeX | Tags: Implementation, Methodology
@article{Verloigne2023,
title = {Making co-creation a trustworthy methodology for closing the implementation gap between knowledge and action in health promotion: the Health CASCADE project},
author = {Maïté Verloigne and Teatske M Altenburg and Greet Cardon and Mai JM Chinapaw and Philippa M Dall and Benedicte Deforche and Maria Giné-Garriga and Sonia Lippke and Homer Papadopoulos and Dimitra Pappa and Marlene Sandlund and Margrit Schreier and Karin Wadell and Sebastien Chastin},
doi = {10.1177/17579139221136718},
issn = {1757-9147},
year = {2023},
date = {2023-07-00},
urldate = {2023-07-00},
journal = {Perspect Public Health},
volume = {143},
number = {4},
pages = {196--198},
publisher = {SAGE Publications},
keywords = {Implementation, Methodology},
pubstate = {published},
tppubtype = {article}
}
An, Qingfan; Sandlund, Marlene; Agnello, Danielle M; McCaffrey, Lauren; Chastin, Sebastien; Helleday, Ragnberth; Wadell, Karin
In: Respiratory Medicine, vol. 211, 2023, ISSN: 0954-6111.
Abstract | Links | BibTeX | Tags: Implementation
@article{An2023,
title = {A scoping review of co-creation practice in the development of non-pharmacological interventions for people with Chronic Obstructive Pulmonary Disease: A health CASCADE study},
author = {Qingfan An and Marlene Sandlund and Danielle M Agnello and Lauren McCaffrey and Sebastien Chastin and Ragnberth Helleday and Karin Wadell},
doi = {10.1016/j.rmed.2023.107193},
issn = {0954-6111},
year = {2023},
date = {2023-05-00},
urldate = {2023-05-00},
journal = {Respiratory Medicine},
volume = {211},
publisher = {Elsevier BV},
abstract = {Background
Incorporating co-creation processes may improve the quality of outcome interventions. However, there is a lack of synthesis of co-creation practices in the development of Non-Pharmacological Interventions (NPIs) for people with Chronic Obstructive Pulmonary Disease (COPD), that could inform future co-creation practice and research for rigorously improving the quality of care.
Objective
This scoping review aimed to examine the co-creation practice used when developing NPIs for people with COPD.
Methods
This review followed Arksey and O'Malley scoping review framework and was reported according to the PRISMA-ScR framework. The search included PubMed, Scopus, CINAHL, and Web of Science Core Collection. Studies reporting on the process and/or analysis of applying co-creation practice in developing NPIs for people with COPD were included.
Results
13 articles complied with the inclusion criteria. Limited creative methods were reported in the studies. Facilitators described in the co-creation practices included administrative preparations, diversity of stakeholders, cultural considerations, employment of creative methods, creation of an appreciative environment, and digital assistance. Challenges around the physical limitations of patients, the absence of key stakeholder opinions, a prolonged process, recruitment, and digital illiteracy of co-creators were listed. Most of the studies did not report including implementation considerations as a discussion point in their co-creation workshops.
Conclusion
Evidence-based co-creation in COPD care is critical for guiding future practice and improving the quality of care delivered by NPIs. This review provides evidence for improving systematic and reproducible co-creation. Future research should focus on systematically planning, conducting, evaluating, and reporting co-creation practices in COPD care.},
keywords = {Implementation},
pubstate = {published},
tppubtype = {article}
}
Incorporating co-creation processes may improve the quality of outcome interventions. However, there is a lack of synthesis of co-creation practices in the development of Non-Pharmacological Interventions (NPIs) for people with Chronic Obstructive Pulmonary Disease (COPD), that could inform future co-creation practice and research for rigorously improving the quality of care.
Objective
This scoping review aimed to examine the co-creation practice used when developing NPIs for people with COPD.
Methods
This review followed Arksey and O'Malley scoping review framework and was reported according to the PRISMA-ScR framework. The search included PubMed, Scopus, CINAHL, and Web of Science Core Collection. Studies reporting on the process and/or analysis of applying co-creation practice in developing NPIs for people with COPD were included.
Results
13 articles complied with the inclusion criteria. Limited creative methods were reported in the studies. Facilitators described in the co-creation practices included administrative preparations, diversity of stakeholders, cultural considerations, employment of creative methods, creation of an appreciative environment, and digital assistance. Challenges around the physical limitations of patients, the absence of key stakeholder opinions, a prolonged process, recruitment, and digital illiteracy of co-creators were listed. Most of the studies did not report including implementation considerations as a discussion point in their co-creation workshops.
Conclusion
Evidence-based co-creation in COPD care is critical for guiding future practice and improving the quality of care delivered by NPIs. This review provides evidence for improving systematic and reproducible co-creation. Future research should focus on systematically planning, conducting, evaluating, and reporting co-creation practices in COPD care.
Rinn, Robin; Gao, Lingling; Schoeneich, Sarah; Dahmen, Alina; Anand-Kumar, Vinayak; Becker, Petra; Lippke, Sonia
Digital Interventions for Treating Post-COVID or Long-COVID Symptoms: Scoping Review Journal Article
In: J Med Internet Res, vol. 25, 2023, ISSN: 1438-8871.
Abstract | Links | BibTeX | Tags: Implementation
@article{Rinn2023,
title = {Digital Interventions for Treating Post-COVID or Long-COVID Symptoms: Scoping Review},
author = {Robin Rinn and Lingling Gao and Sarah Schoeneich and Alina Dahmen and Vinayak Anand-Kumar and Petra Becker and Sonia Lippke},
doi = {10.2196/45711},
issn = {1438-8871},
year = {2023},
date = {2023-04-17},
urldate = {2023-04-17},
journal = {J Med Internet Res},
volume = {25},
publisher = {JMIR Publications Inc.},
abstract = {Background
Patients with post-COVID/long-COVID symptoms need support, and health care professionals need to be able to provide evidence-based patient care. Digital interventions can meet these requirements, especially if personal contact is limited.
Objective
We reviewed evidence-based digital interventions that are currently available to help manage physical and mental health in patients with post-COVID/long-COVID symptoms.
Methods
A scoping review was carried out summarizing novel digital health interventions for treating post-COVID/long-COVID patients. Using the PICO (population, intervention, comparison, outcome) scheme, original studies were summarized, in which patients with post-COVID/long-COVID symptoms used digital interventions to help aid recovery.
Results
From all scanned articles, 8 original studies matched the inclusion criteria. Of the 8 studies, 3 were "pretest" studies, 3 described the implementation of a telerehabilitation program, 1 was a post-COVID/long-COVID program, and 1 described the results of qualitative interviews with patients who used an online peer-support group. Following the PICO scheme, we summarized previous studies. Studies varied in terms of participants (P), ranging from adults in different countries, such as former hospitalized patients with COVID-19, to individuals in disadvantaged communities in the United Kingdom, as well as health care workers. In addition, the studies included patients who had previously been infected with COVID-19 and who had ongoing symptoms. Some studies focused on individuals with specific symptoms, including those with either post-COVID-19 or long-term symptoms, while other studies included patients based on participation in online peer-support groups. The interventions (I) also varied. Most interventions used a combination of psychological and physical exercises, but they varied in duration, frequency, and social dimensions. The reviewed studies investigated the physical and mental health conditions of patients with post-COVID/long-COVID symptoms. Most studies had no control (C) group, and most studies reported outcomes (O) or improvements in physiological health perception, some physical conditions, fatigue, and some psychological aspects such as depression. However, some studies found no improvements in bowel or bladder problems, concentration, short-term memory, unpleasant dreams, physical ailments, perceived bodily pain, emotional ailments, and perceived mental health.
Conclusions
More systematic research with larger sample sizes is required to overcome sampling bias and include health care professionals' perspectives, as well as help patients mobilize support from health care professionals and social network partners. The evidence so far suggests that patients should be provided with digital interventions to manage symptoms and reintegrate into everyday life, including work.},
keywords = {Implementation},
pubstate = {published},
tppubtype = {article}
}
Patients with post-COVID/long-COVID symptoms need support, and health care professionals need to be able to provide evidence-based patient care. Digital interventions can meet these requirements, especially if personal contact is limited.
Objective
We reviewed evidence-based digital interventions that are currently available to help manage physical and mental health in patients with post-COVID/long-COVID symptoms.
Methods
A scoping review was carried out summarizing novel digital health interventions for treating post-COVID/long-COVID patients. Using the PICO (population, intervention, comparison, outcome) scheme, original studies were summarized, in which patients with post-COVID/long-COVID symptoms used digital interventions to help aid recovery.
Results
From all scanned articles, 8 original studies matched the inclusion criteria. Of the 8 studies, 3 were "pretest" studies, 3 described the implementation of a telerehabilitation program, 1 was a post-COVID/long-COVID program, and 1 described the results of qualitative interviews with patients who used an online peer-support group. Following the PICO scheme, we summarized previous studies. Studies varied in terms of participants (P), ranging from adults in different countries, such as former hospitalized patients with COVID-19, to individuals in disadvantaged communities in the United Kingdom, as well as health care workers. In addition, the studies included patients who had previously been infected with COVID-19 and who had ongoing symptoms. Some studies focused on individuals with specific symptoms, including those with either post-COVID-19 or long-term symptoms, while other studies included patients based on participation in online peer-support groups. The interventions (I) also varied. Most interventions used a combination of psychological and physical exercises, but they varied in duration, frequency, and social dimensions. The reviewed studies investigated the physical and mental health conditions of patients with post-COVID/long-COVID symptoms. Most studies had no control (C) group, and most studies reported outcomes (O) or improvements in physiological health perception, some physical conditions, fatigue, and some psychological aspects such as depression. However, some studies found no improvements in bowel or bladder problems, concentration, short-term memory, unpleasant dreams, physical ailments, perceived bodily pain, emotional ailments, and perceived mental health.
Conclusions
More systematic research with larger sample sizes is required to overcome sampling bias and include health care professionals' perspectives, as well as help patients mobilize support from health care professionals and social network partners. The evidence so far suggests that patients should be provided with digital interventions to manage symptoms and reintegrate into everyday life, including work.
2022
Zapata-Restrepo, Jorge R; Torné, Sacra M; Giné-Garriga, Maria
In: Brains: Business, Research, Ageing, Innovation, Neuroscience & Social Journal, vol. Ageing, pp. 19-24, 2022.
Links | BibTeX | Tags: Implementation
@article{nokey,
title = {Cocreación y realidad virtual/aumentada como herramientas para fomentar la participación y visibilidad de los adultos mayores en procesos de planificación urbana. },
author = {Jorge R Zapata-Restrepo and Sacra M Torné and Maria Giné-Garriga},
url = {https://t.co/PCHhMssGuT},
year = {2022},
date = {2022-09-01},
urldate = {2022-09-01},
journal = {Brains: Business, Research, Ageing, Innovation, Neuroscience & Social Journal},
volume = {Ageing},
pages = {19-24},
series = {Brains: Business, Research, Ageing, Innovation, Neuroscience & Social Journal},
keywords = {Implementation},
pubstate = {published},
tppubtype = {article}
}
Coming Soon...
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- Enriching the Existing Knowledge about Co-creation: Identifying Dimensions of Co-creation using Explicit Theory in Various Research Fields
- Towards System-Level Co-creation in eHealth Tool Development: Case Study of developing an eHealth tool for people with COPD.
- Revising the PRODUCES Framework to meet the current needs in co-creation for Public Health Intervention Design and Implementation
- The experiences of school staff with their involvement in the co-creation of school-based actions: A thematic synthesis of qualitative studies to inform Health CASCADE
- Co-creating digital tools in health care: Results from three case studies
- Elicited Insights from International Academics and a Dutch NGO on Youth Participatory Action Research – A Health CASCADE Study
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- Empirical ethical decision-making among those involved in co-creation practice: a Health CASCADE critical scoping review
- Comparison of Co-creation Methods in Research and in Practice: A Health CASCADE Study
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- Evaluating The Effect Of Co-Created Interventions To Reduce Sedentary Behaviour In Scottish Workplaces: A Health CASCADE Study
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